Changing Family Needs After Brain Injury

Journal of Rehabilitation,  Oct-Dec, 1998  by Peter Stebbins,  Paul Leung

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Table 2. Group 2 (2+ years post injury n=21) FNQ toy twenty reported needs Important/Very Important and the degree to which they were rated Met

                                                      Important/
                                                     Very Important
             I Need.....                             % Endorsement

To have my questions answered honestly                   100.0

To have a professional to turn to for                    100.0
advice when my relative needs help

To have enough resources for my relative                 100.0
(e.g. rehabilitative programs, counselling)

To have explanations from professionals                   95.9
given in terms I can understand

To be shown that medical, educational or                  95.2
rehabilitation staff respect my relative's needs
or wishes

To be told about all changes in                           95.2
my relative's medical status

To have complete information on the                       95.2
medical care of traumatic injuries

To have complete information on my                        95.2
relative's physical problems

To have enough resources for myself or                    95.2
the family (e.g. financial or legal counselling,
respite care, counselling, nursing or day care)

Help in getting over my doubts and fears about            95.2
the future

To have complete information on my relative's             90.5
problems in thinking (e.g. confusion, memory)

To be assured that the best possible medical              90.5
treatment is being given to my relative

To be shown that my opinions are used in                  90.5
planning my relative's treatment,
rehabilitation or education

To have other family members understand my                90.5
relative's problems

Help in remaining hopeful about the future                90.5

To have different professionals agree on the              90.5
best way to help my relative

To be told if I am making the best possible               90.5
decisions about my relative

To get a break from my problems and                       90.5
responsibilities

To have help from other members of the family             85.7
in taking care of my relative

To be shown what to do when my relative is acting         85.7
strange or upset

                                                        Met %
                 I Need.....                         Endorsement

To have my questions answered honestly                   42.9

To have a professional to turn to for                    23.8
advice when my relative needs help

To have enough resources for my relative                 14.3
(e.g. rehabilitative programs, counselling)

To have explanations from professionals                  42.9
given in terms I can understand

To be shown that medical, educational or                 28.6
rehabilitation staff respect my relative's needs
or wishes

To be told about all changes in                          23.8
my relative's medical status

To have complete information on the                      23.8
medical care of traumatic injuries

To have complete information on my                       33.3
relative's physical problems

To have enough resources for myself or                    9.5
the family (e.g. financial or legal counselling,
respite care, counselling, nursing or day care)

Help in getting over my doubts and fears about            4.8
the future

To have complete information on my relative's            28.6
problems in thinking (e.g. confusion, memory)

To be assured that the best possible medical             23.8
treatment is being given to my relative

To be shown that my opinions are used in                 23.8
planning my relative's treatment,
rehabilitation or education

To have other family members understand my               23.8
relative's problems

Help in remaining hopeful about the future               19.0

To have different professionals agree on the             19.0
best way to help my relative

To be told if I am making the best possible              14.3
decisions about my relative

To get a break from my problems and                       4.8
responsibilities

To have help from other members of the family            14.3
in taking care of my relative

To be shown what to do when my relative is acting         4.8
strange or upset